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New web tool offerss patients personalised drug information

IGuard : 02 May, 2008  (New Product)
A free, patient-driven online healthcare community,, has launched of an innovative tool that brings patient empowerment to a new level.
With almost half of all Americans taking prescription drugs, and eight out of ten surfing the web for their healthcare information, now lets users see real time reports of side effects experienced by members who have completed a brief survey on their medication experience.

The tool is first web service to give patients personalised drug information - giving them the knowledge and power they need to manage their own healthcare. is now positioned to provide ‘live’ updates on how medications are working by posting real-time reports of side effects as experienced by members.

Unlike other health and drug-safety websites, which provide static content, re-written information found on package inserts, and forums for patient discussions, monitors how different drugs are working across its network of users by conducting random surveys on an on-going basis.

Members of the community can easily access pooled, anonymous information on side-effects, safety and effectiveness so they know what to expect when starting a new treatment.

' was created for patients to share information in a simple, structured way. No other site out there has a balanced information exchange that 'demystifies' the process, can give our users a level of comfort and arm them with the information they need to get informed and stay informed about their healthcare,' said Dr Hugo Stephenson, founder and creator of with a specialty in epidemiology and drug safety. 'Since inception, the FDA has given us feedback and direction on how to improve our value to those patients. The release of this new data arms our patients with far more information than they've ever had before.'

The site, which went online in October 2007, has taken off with more than 10,000 new users signing up every week. Patients rely on the feedback they find on the site and often communicate that information to their personal doctors. ' has been among the most valuable sites I've come across,' said patient Mary Lou Sakosky of Troy, Ohio, who was diagnosed with several conditions including heart disease, bipolar disorder, Bell's palsy and thyroid disorders. 'Without the site, I wouldn't have known about many of the side effects for the prescriptions I'm taking and everything I need is in one place'

If patients want to learn about treatment options for their diagnosis, they can see at a glance the average effectiveness and satisfaction scores, the likelihood of side effects, and what additional information others wish they were told before starting the medication.

According to feedback of patients taking a common pain medication to treat shingles and fibromyalgia, 70 percent experience side effects, including drowsiness, weight gain, grogginess and dizziness, and 45 percent wish they were told more about the potential side effects before starting the medicine. And among users of a new smoking cessation medication, 69 percent say they experience side effects, especially nausea and vivid dreams, and 28 percent wish they were told more about the potential side effects and potential drug interactions, prior to taking the medicine. Most physicians don't have this type of information readily available for their patients.

'It is crucial that patients receive accurate drug safety information, and is an outstanding source for that information,' according to Joe and Terry Graedon, co-authors of the nationally syndicated The People's Pharmacy newspaper column, and co-hosts of the award-winning health talk radio show, The People's Pharmacy, that airs weekly throughout the country. 'The site is easy to use and it takes complex information and makes it available to consumers. The combination of patient feedback and side effect analysis is hard to find anywhere else.'

Feedback obtained from the website extends beyond the patient to the scientific community. Rather than accept advertising or sell data, generates revenue by conducting surveys among the membership. Pooled results from these surveys allow companies to learn about improving drug research and development, as well as patient attitudes towards drugs already on the market. Patients must first consent to participate in a survey and are compensated for their time.

'We feel very strongly that connecting real patients in the real world with drug researchers will allow us to learn about medicines much faster,' stated Dr Stephenson. 'And in the end, isn't that what we all want?'
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